At Usher 2020, we want to make sure that never happens!
Watch one family’s journey with Usher Syndrome.
Every day, people all over the world are slowly losing their sight due to a rare genetic disorder called Usher Syndrome. The real tragedy is that these same people already lost their hearing and struggle with maintaining their balance.
Since 2012, Usher 2020 has been supporting researchers around the world to make sure this doesn’t happen. Specifically, we have been looking for treatments to slow, stop, or reverse the degeneration of sight caused by Usher Syndrome. Through our work, we now have several treatments that are ready to go into clinical trials for those going blind due to Usher Syndrome and Retinitis Pigmentosa. Find out more about how you can support our cause.
A Guide Dog Brings Independence
Listen to how a guide dog can bring hope to a young person with Usher Syndrome.
Usher 2020 launches Give It Up 4 Sight campaign to move therapies to clinical trials, beginning with Retinitis Pigmentosa and Usher Syndrome and moving to other Inherited Retinal Diseases.
Learn about the Usher 2020-supported work done by Dr. Peter Campochiaro at The Wilmer Eye Institute that is leading to an NEI-supported Clinical Trial for Retinitis Pigmentosa.
Thank you from the Usher Community to all the researchers who have supported our work.
See what Cochlear Implants have meant for two children with Usher Syndrome.
Do you or does someone you know have Usher Syndrome? If so, contact ustoday to support clinical trials and help end the loss of sight caused by Usher Syndrome and Retinitis Pigmentosa.
