At Usher 2020, we want to make sure that never happens!
Watch one family’s journey with Usher Syndrome
Every day, people all over the world are slowly losing their sight due to a rare genetic disorder called Usher Syndrome. The real tragedy is that these same people already lost their hearing and struggle with maintaining their balance.
Since 2012, Usher 2020 has been supporting researchers around the world to make sure this doesn’t happen. Specifically, we have been looking for treatments to slow, stop, or reverse the degeneration of sight caused by Usher Syndrome. Through our work, we now have several treatments that are ready to go into clinical trials for those going blind due to Usher Syndrome and Retinitis Pigmentosa. Find out more about how you can support our cause.
A Guide Dog Brings Independence
Listen to how a guide dog can bring hope to a young person with Usher Syndrome.
Usher 2020 launches Give It Up 4 Sight campaign to move therapies to clinical trials, beginning with Retinitis Pigmentosa and Usher Syndrome and moving to other Inherited Retinal Diseases.
Scott Dorfman, CEO of Usher 2020-supported Odylia Therapeutics, speaks at NCATS/NIH meeting on the path to bring therapies for rare diseases like Usher Syndrome to the clinic.
See press release and listen to the podcast on Usher 2020-supported company, Odylia Therapeutics, bringing rare eye disease therapies from the lab to the clinic.
See what Cochlear Implants have meant for two children with Usher Syndrome.
Do you or does someone you know have Usher Syndrome? If so, contact ustoday to support clinical trials and help end the loss of sight caused by Usher Syndrome and Retinitis Pigmentosa.
